I physically can’t burp. The muscles in my throat don’t open to let air out. We had r/noburp on reddit, but I don’t know if there’s an equivalent here.
Can you pass gas?
Yes. More than others, in fact, because the gas has nowhere else to go. Sometimes it makes a weird gurgly noise though.
Can you throw up?
Last time I threw up was around 6 years ago. I can, just very rarely.
Can you buy a car?
Nope, I don’t have a driver’s license.
What? Is this related?
I think the commenter was making a gas joke.
Oh shit, there are others!
And then there were three.
ADHD+Autism
Very annoying. Most ppl already struggle to understand ADHD. Now try to explain autism or what it feels like when you have both. But then again, I also don’t fit in with the autism crowd cause my autism is just light enough that I recognize my mistakes but I can’t fix them.
I mean tbf how could someone understand autism if I don’t really understand it myself. How could I, I’ve been born with a warped brain, I have no comparison.
You can kinda understand through extensive observation, but there’s only so many comparisons you can make since every person is unique.
No, I haven’t.
deleted by creator
I used to have costochondritis which was an inflammation of the cartilage in my sternum. It would feel like a pressure on my chest that wouldn’t be relieved until I bent backwards to stretch and “pop” my chest. So occasionally friends and family would see me stretching and wonder wtf I was doing
I’ve had this too. Sometimes when I would stretch to crack my sternum, I would get this wave of heat and eventual pain in my chest. So it was a gamble every time I felt that I had to crack it. It’s been a lot better in recent years but it never really went away completely.
Yes, same thing would happen to me! It was a risk trying to stretch it out because if it works the pain would go away but if it didn’t pop, then the pain would be worse than when I started. Sorry you’re still going through it. My doctor recommended NSAIDs for the pain but they didn’t help me too much. Eventually the problem went away and I luckily haven’t had it come back
I had that for a few years. Scary at first, then mostly just annoying to explain: yes I’m having chest pain, yes I’m sure it’s not a heart attack, yes my chest is going to make a noise.
Chroma disease, people don’t get that when I’m burned out for the day it won’t help to take a short break. Immunosuppressants are a bitch.
Edit: shitty Phone. Yes Crohn’s
There’s threes of us here!
Crohns? That’s what I have and “invisible disability” is an apt description.
My Dad lived with diagnosed Crohns for 25 years. We covered for him as a family however we could. But you just don’t get how debilitating it can be unless you’re intimate with it.
As a kid I thought my dad was lame and a bore for not doing a lot of things I wanted. As an adult and having cared for him for most of the last 10 years, I realized he was a warrior that achieved more than any other in his body could’ve.
People think I’m a drunk because of my rosacea.
Those are two completely unrelated aspects of myself.
A lot of people don’t understand bipolar disorder, or schizoaffective disorder specifically in my case. “Had” being incorrect, as it’s a lifelong illness.
Bipolar isn’t so bad: If you’re down or manic just be patient and you’ll be back to awesome again 👍. It’s the promise you must keep to yourself and the older you get the better you’ll get at it.
Schizoaffective disorder means that no one has power over you but you. Seriously, other much more sensitive people could off themselves because of something someone said but not you. Your emotional barrier is tough AF. You’re incredibly difficult to scam and a social engineer’s worst nightmare. You don’t fall for emotional trickery.
As somebody with schizoaffective, I don’t understand where you’re coming from saying it means I’m the only one with power over myself. In fact, I’ve found even after being well medicated I’m incredibly easy to manipulate. All you have to do is tell me somebody’s trying to control me and instantly I’ve spun a 2000 foot deep web about how they’re doing it. Then you just tell me you have the solution and suddenly I’m eating out of your hand.
And my emotional barrier is paper thin. I only look unaffected by things. In reality if I’m the slightest bit scared or upset, I’m breaking down inside and spinning another web to fill in the cracks. My whole existence is built on delusions and lies I’ve built up to keep myself together, such that even now that I’m in a place where I theoretically could start breaking them down and rebuilding properly, I won’t, because I’d fall apart, and I can’t handle that.
I’ve decided to just be happy being fucked up. Not because that’s right, but because that’s the only thing I can survive.
I’m incredibly easy to manipulate
Then let me manipulate you into being happy 👍
Dark Voodoo Intensifies
I like your positivity.
Luckily, I am happy most of the time nowadays, just, y’know, in spite of my disorder.
I wouldn’t go so far as to say that “bipolar isn’t so bad,” because it sure can be. However, I have stopped whining, complaining, and lamenting. I have accepted my illness. I take my medication and I try to live my best life.
Schizoaffective disorder is a much greater challenge, but again, I have accepted it. I bear this cross and no matter what happens, you’re right, I have power over myself. I may not always have full control over my mental faculties, but I have been through the hell of my mind turning on itself. What are the trivialities of life compared to that?
Life sucks for us all in different ways. I do not think I have it worse than anyone else, just tough in my own way. We each must deal with our own challenges.
I understand bipolar disorder (though as an observer). Emotional lag is the worst kind of lag.
I’m not sure how much of schizoaffective disorder I understand, but a friend of mine has it and know some of their experience.
Schizoaffective disorder is a terrifying and a lonely illness, so I hope that your friend doesn’t suffer too much — my heart goes out to them. I have my wife to help me when I need her, but I have otherwise chosen to isolate myself and handle it on my own. I take my meds, I take care of my mind and body, and I attend therapy to get the tools I need. I have always fought my own battles and I don’t think anyone can actually help me, nor could I ever bring myself to put that burden on anyone. I have my journal, the gym, my running shoes, and my workshop, plenty of healthy ways to get help without burdening anyone who doesn’t know what they’re signing up for.
Sorry about that, my friend. Remember, you’re always welcome here. Sending lots of hugs.
Much appreciated.
A close friend of my deals with schizoaffrctive disorder. One of the greatest guys I know, but it definitely has a huge impact on his life.
The illness impacts us all in many ways and none of us has it easy. I’m more fortunate than others in that I’m classed as “high-functioning,” whatever that’s supposed to mean.
I hope your friend doesn’t suffer too much, but I’m glad he has someone in his life who can be there for him.
High five! Schizoaffective, type 2 bipolar. And some BPD sprinkled on top. Recently I got some changes in my meds and I finally got days when I’m mostly emotionally stable. Is this how people feel? Made me cry. I wish the best for you.
Same to you. I also have some BPD (another horribly misunderstood illness!) to deal with, but I’m old enough and in a stable relationship, so I think most of it is in remission. Bless my wife, because wow. I was a horrible person to deal with when I was younger.
Be well!
I am living with chronic vertigo. I don’t know if it counts as an illness, but having this condition has made day to day living rather difficult. I feel strange all the time, there’s this constant swaying sensation, my head feels like it is wrapped in layers of gauze and on really bad days even my vision appears clouded. I can’t stand for prolonged periods when even sitting down doing nothing much feels like a drag.
I appear outwardly fine though, and even my family members forget that some basic actions that they think nothing of no longer come with ease for me. Everything I do, even holding onto, say, a plate, when I am doing the dishes, I am doing it with utmost deliberate effort because the internal swaying sensations I feel have me thinking I am going to tip over any moment and I will end up dropping whatever I am holding.
Go see neuro. Get an mri at least.
Sympathies. Chronic vertigo is horrible, especially when it leads to nausea. Hope you find an effective treatment soon.
I think this may more for acute vertigo, but have you tried the Epley maneuver?
The epley maneuver is to treat BPPV- where an otolith becomes dislodged and then finds its way into a semicircular canal (normally the latteral canal). If it was causing vertigo it would have to be the posterior canal. Not to say it isn’t possible, but it is the statistically least common canal to happen in. Not only that, but the epley wouldn’t treat it. Even then, this strongly doesn’t sound like BPPV, whose episodes would last seconds to minutes. If the episodes are lasting minutes to hours it is a short list of other possible things. best case this is vestibular migraine of it was vestibular related. More likely this is central involve ment and the person needs to see a neurologist. I have seen patients like this before for balance accessments. We will do the testing on them(VNG and caloric testing), but then have to tell them to go to a different department because it isn’t part of the vestibular system causing the problem. I would push to see an ENT/neuro/PCP sooner than later because worst case is it is a developing vestibular schwanoma (non cancerous tumor) and the sooner the better to take care of it or at least monitor it.
After rereading this in the morning/afternoon and not late night I realized my mistake. BPPV is normally the posterior, more infrequently the anterior, and to be true up/down vertigo only it would have to be both canals at the same time. The vestibular organ is odd. Either way, this whole scenario doesn’t even sound like bppv (peripheral) and is most likely something up line in the brain (central).
Fun fact: The director of Mario Kart 8 had vertigo so bad that the rest of the crew working on the game used him as a test subject for the game to see when a level’s road was too twisty.
I work with a guy who suddenly developed this in the middle of a call. I had to help him back to the office, stopping so he could puke a couple times. He was gone for a while and I don’t think he ever got rid of it.
Unlike the othe comment, this DOES sound like it could be BPPV, where something like the epley maneuver would work. Typically we would use the Semont-plus maneuver (same idea, slightly different). Or there is a fun half somersault maneuver the person could try on their own.
Bppv will be brief but intense episodes lasting seconds with lasting nausea for minutes and exasterbated by head movements. You will also see their eyes jumping or flicking (nystagmus).
If seizures count as an illness, vertigo definitely does. I don’t get vertigo but I got mildly irritated once when someone was behind in the DVD clearance section of Walmart once and said “they need trigger warnings for vertigo now? What has society come to?” (it was a racing movie with lots of excessive dutch angles). I bet the whole aisle got distracted by my attempt at explaining sometimes these additions are just appreciated if not for some people being so obsessed with media freedums that they forget the human body exists.
deleted by creator
Thank you. Long Covid is exactly what prompted me to create this post. I’ve been having symptoms for 15 weeks (insomnia, brain fog, exhaustion). My primary care doctor was useless.
I’ve since discovered a lot of literature on my own that has validated my experience: that it’s typical for general doctors to have no clue, they’re still working on finding good biomarkers for the condition (it’s not easy to test for), and I’ve learned a bunch about PEM (post-exertional malaise) and self-pacing / energy-management techniques to prevent the push-crash cycle that people with Long Covid experience.
Did you take an antiviral like Paxlovid when you had COVID? Apparently they’re supposed to reduce likelihood/symptoms of long COVID, but there’s not a large amount of published research about it yet.
I have a few, but the most commonly misunderstood of these… I don’t even know if it has a name. I’m just socially slow and people assume I’m an introvert because of it.
Made worse because schools put people in special education classes for social issues, they can’t comprehend for some reason that people just don’t all socialize the same way.
It’s not all that uncommon either if you believe in the statistic that the average person lies a hundred times a day. WHY do they lie a hundred times a day? Because of exchanges like this.
“Hello.”
“Hi.”
“Hey, how are you today?”
“Good, just finished washing the dishes.” (lie to keep the conversation alive)
Which means our society, by training people to value sociability more than friendliness, are breeding its own compulsive liars. And on a side note, that brings us to another ill people don’t understand, because people think compulsive lying is a “bad seed” kind of thing when our environment (and sometimes the rebound after being 100% honest for a long time) can make us that way.
It is completely 100% ridiculous to try to ‘diagnose’ you from this short of a description, but it could be that you’re autistic to some degree.
Us autistic folks like to take moral issues a lot more personal, like having to lie. We’re often at odds with societal standards. We may feel like we’re socially slow, even though in my experience, it’s usually just that we socialize differently. And we definitely overanalyze things.
You wouldn’t be the first to suggest it’s autism (and I thank you for your hoping to help), though I’ve asked doctors about that before and they say they themselves see little going for the theory I have autism (as opposed to, say, dyspraxia, dyslexia, and this which all are equally possible/probable/improbable as causes except the last one). I can relate to the societal standards part though, it was one of the thought processes behind a recent post of mine that seemed to have gotten a mixed response.
I do also have anhedonia, but I never 100% could confirm how much of a connection it has because of how differently it manifested based on the time of my childhood.
What? Are you saying your illness is lying? I’m not really following…
No, I’m saying it can lead to lying in other people, because people begin to realize it’s easier to come up with little conversational lies than it is to think of what things in one’s own life are relevant enough to mention in order to keep a conversation alive. I’m saying me being socially slow is the illness. One person I know likened it to dyslexia but for charisma instead of literacy.
Ah gotcha, that makes sense. Thanks!
deleted by creator
I myself have never had a good experience with doctors, mostly psych ones. I’ve had some big issues combined with several minuscule ones like non-24 and stunted emotional quality, and they played around with all of them like it was interpretational. At one point was deathly allergic to at least one of my medications yet they weren’t so quick to change mine, leaving me to endure, as well as making counselors/psychiatrists legally mandated for many people where I live even for many who have no issues at all. Lemmy is slow to learn that whether or not medical professionals take their liberties is not a matter of debate.
Cancer. Sure, people realize you undergo treatment for a while. You may be in the hospital for a bit. You’re very sick but you do your best. Eventually (maybe) you get to some state termed “remission.” You’re probably no longer being admitted to the hospital at this point. So you’re basically all better right?
No. Not at all.
There are lingering problems that vary among patients. It’s hard to explain. Very few people understand what it’s like to feel under the weather for days, weeks, months. To live with the fear of relapse. To wonder if the chemo you underwent will cause you to develop a secondary cancer later. To have bone damage from steroids. To have increased sensitivity (read: pain) in many senses/ places from the courses of radiation. To have to fight harder for jobs if you lost yours (or didn’t have one) and now have a gap. You may be such a determined, hard worker, but it doesn’t take much to be seen as a liability.
Even if someone thinks they understand, they really probably don’t. You dont even fully understand what’s happening—today you wake up and just can’t. You’re tired. You’re trying but you’re so tired.
I can’t get too upset, I guess, with people who don’t understand. But I wish they could. Things may get better, but they’ll never really be back to “normal,” whatever that even means.
I came down with Type 1 Ligma as a junior in highschool. Most people don’t even know what the disease is
Fine, I’ll bite
sigh What’s ligma?
You will bite? Not eat?
I will bite, and I will bite down hard
Damn, Ligma. I’ve heard that’s rough. 😂
This is the only ligma-related meme I ever laughed at.
Thanks Pipey.
Woah dude totes lucky to b alive?!
